One of the keys to my effectiveness as a patient advocate is the spiral notebook I maintain for each patient. This is simply a chronological record of everything I learn and questions I have. On the inside front cover, I list the names and telephone numbers of each physician. This was particularly important in my sister’s case where she saw at least a dozen docs—maybe more—over a period of a year and a half. I also keep track of the names of office staff I’ve talked to. They appreciate being called by name the next time I call back and I quickly learn who to talk to in each office to get what I need.
Each day I’m at the hospital I note the date and anything of importance that happens that day—tests, physician consults, med changes, allergies, answers to questions, problems, names of helpful staff, … anything. I also log telephone calls both during and between hospitalizations. I use highlighters and different colors of ink as needed to be able to find information quickly.
This binder has been invaluable over time. I’m often the only person in the room with an accessible record of care, especially over multiple hospitalizations. I can’t tell you how many times my notes have prevented duplicate tests or treatments or more important, treatment errors. This not only protects the patient, but also helps the staff do their job better. So as soon as you know you’re in for hospital duty, grab a notebook!